Friday, October 2, 2009

Happy Birthday / Cure JM Awareness Day

blogs for cure jm
My Love:

Most years you ask me not to buy you anything for your birthday. This year, I listened.

However, I couldn't let this one pass quietly.

Seven years ago today, we got the news that our sweet little girl had juvenile dermatomyositis, a strange disease neither of us had ever heard of then and most people still haven't heard of today. It was an odd birthday gift for you, but a gift nonetheless. Although we quickly learned that it had no cure, we welcomed the fact we finally knew what was making her so ill and that there were ways it could be treated.

Since then, you have worked tirelessly to raise awareness of all the juvenile myositis diseases and raise funds to find a cure for them. I marvel at (and am jealous of) how dedicated you are and how good you are it.

However, this is your birthday. You deserve a day off.

So, for your gift, a bunch of my blogmates volunteered to spread the word for you on this day. Each has posted a piece about our struggle with getting Thing 1 diagnosed in hope of raising awareness of this rare autoimmune disease and the need to find a cure for it.

If we're lucky, we'll even raise a few dollars for the cause.

Happy birthday, My Love, and Happy Cure JM Awareness Day. I love you.

*

To learn more about JM, visit Cure JM  Foundation.
To make a tax-free donation to fund research into a cure, visit our personal FirstGiving page.


Thanks to all those participating in Cure JM Awareness Day today:
A Family Runs Through It
A Man Among Mommies
Ann's Rants
A Vapid Blonde
A Work in Progress
All Blogged Up
All That Comes With It
Another Suburban Mom
Are You Sassified?
Avitable
A Whole Lot of Nothing
Backpacking Dad
Bee's Musings
Bern This
Better in Bulk
Bitchin' Wives Club
Blok Thoughts
BOw1e Art
The Bloggess
Blog Stamford
The BS Blog
Busy Dad
Camera Crazy
Candid Carrie
Carolyn ... Online
The Cheek of God (special thanks for creating the badge)
Cheeky's Hideaway
CheerUp Nation
Clare's Dad
A Couple Smokey Acres
CT Mom
Citizen of the Month
Clark Kent's Lunchbox
The Chronicle of Linnnn
Cynical Dad
DadCentric
DC Urban Dad
Do as I Say, Not as I Do
Dogs and Jeans
Dr. Snarky
Embellished Truth and Polite Fiction
Elastamom's Excerpts
Erasing the Bored
Fairfield County Child
Fairly Odd Mother
For a Different Kind of Girl
Daddy Geek Boy
From Stage Dives to Station Wagons
The Goat and Tater
Good Mom/Bad Mom
Gray Matter Matters
The Holmes
Honea Express
Hot Dads
How to Become a Cat Lady ...
How to Party with an Infant
Hubman's Hangout
I Am The Diva
Idiot's Stew
I Pee in the Wind
Irish Gumbo
Is It Five O'Clock Yet?
It's My Life and I'll Blog if I Want To!
Janana Bee
Jeannie's Happy World
Jen's Voice
Joey K's Place
Just Jules
Life Just Keeps Getting Weirder
Lost and Found in India
Love Letters by Cora
Manic Mariah
Mayhem and Moxie
Mean Girl Garage
Mediocrity Mockery
Midwest Moms
Miss Britt
Mom 101
Mommymae
Momma Kiss
Mommy Wants Vodka
Momo Fali
Motherhood in NYC
Mr. Big Dubya
Muskrat
Notes from the Sleep Deprived
My Name is Cat
Notes from the Cookie Jar
Not the Rockefellers
Oh My Goddess
One Zen Mom's Cafe Mom Journal
Okay. Fine. Dammit.
Outnumbered by the Brood
Pacing the Panic Room
PapaTV
Pet Cobra
Pop and Ice
Post Picket Fence
Pseudonymous High School Teacher
Real World Venus vs. Mars
Stamford Notes
Stamford Scribes
Stamford Talk
StationStops
Stiletto Mom
Streets of Stamford
Sweet Pea Surry
Swirl Girl's Pearls
Temporarily Me
Tattooed Minivan Mom
This Week on the Internet
Trials and Tribulations
TwoBusy
The Verdant Dude
Vodka Mom
Unmitigated
Unraveling Life's Mysteries
Wait in the Van
Welcome to Sageville
Wing Dang Doo
The World According to Me
The Yellow Factor
Zen Mom

74 comments:

  1. Sending big love and hugs to you and your family today, Kevin!

    XO

    Anna

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  2. Happy birthday! May this one be extra special . . .

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  3. I added it as my post for the day. Glad to help.

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  4. I have never heard of that disease. Looked it up though through your link. Very weird autoimmune thing. It sounds like a great cause. Well, you educated me about it, and I appreciate that.

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  5. I'm sure this list will grow as the day goes on, and well it should. I hope you guys fly past the fundraising goal. Happy birthday to Rhonda!

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  6. Nearly a hundred people. Wow. He's hoping it grows even beyond that.

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  7. Happy Birthday, Rhonda. You rock!

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  8. FADKOG brought me here. I have never heard of it either. Blessings to you on your work and your daughter.

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  9. Just read you on Ann's Rants
    What could be a more fitting birthday gift than the gift of life?

    I will give you space on my blog today.

    Peace - Rene

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  10. We can do anything if we put our minds to it! The badge will be on my blog too today. And Happy birthday little one!

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  11. Happy birthday to your wife. It's my pleasure to help spread the word and maybe even get someone to donate a few bucks to a worthy cause.

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  12. Big birthday wishes coming Rhonda's way!

    And you did a great job on this, Kevin!

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  13. I added another one to my other blog at http://www.cradlechatter.com/modern-mommy/

    I too, bet this list is going to grow like crazy :)

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  14. I just found your blog through Amy's (that bitch)blog and my heart is still racing.

    My daughter was diagnosed with Lupus at the age of 10 and our quest to get a diagnosis was somewhat similar. She's 19, now, and a Freshman in college. . .

    I pray on a daily basis that she remembers to take her medicine and continues to stay healthy.

    Beautiful present for your wife. . .

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  15. Read about his on sass' blog, I reposted for you. Hope you get a lot of awareness today!

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  16. Hope this is a very happy birthday in your home!

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  17. Happy birthday Rhonda. And nice job putting all of this together Kevin. It is a pleasure and honor to be involved.

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  18. Just saw on Twitter that this was the day Lance Armstrong was also diagnosed. I've asked him to RT...maybe others could do the same!

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  19. Just Jules sent me here and I want to send your family blessings and good health

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  20. Best. Birthday. Present. Ever.

    Well done Kevin.

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  21. What a perfect present. Happy Birthday Wife!! I'm glad to help in my small blog way!!
    ttownsend@bex.com

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  22. What an amazing gift! I am so glad to see that the list is growing. Happy Birthday Rhonda!

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  23. Happy, Happy Birthday. So glad to help.

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  24. Bravo! Bravo!

    Kevin, we barely know one another in bloggy land, but I stand here so impressed and proud of what you pulled off.

    Look at that list!!

    And more people are joining in the effort as we speak.

    Warmest regards to all of you,
    Ann

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  25. A very happy birthday to you, Mrs. At Home and Uncool.

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  26. Read your post on Queen Jeannie! Just coming by to say hi. Happy Birthday!

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  27. Happy Birthday to Not Always Home and Totally Cool! I am cash free right now, just getting my feet under me in freelance, but I will post about you today, even though I am no Ernest Hemingway, and add a link to my sidebar for donating. I love it when people use blogs for stuff like this. Very "New World."

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  28. That's social media in action, my friend.

    Happy birthday to your sweet wife. Give your family a hug from me.

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  29. Happy Birthday:

    http://unmitigated.typepad.com/unmitigated/2009/10/its-kevins-wifes-birthday.html

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  30. Could not think of a better way to spend my Friday. Happy Birthday.

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  31. What an awesome thing all of you are doing today!

    Please wish your wife a very Happy Birthday today!

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  32. I was sent here by Kristine and Ann. Happy Health to your daughter and Happy Birthday to your wife! Reposting and sending healing thoughts your way.

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  33. Happy Birthday and what a great thing you're doing.

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  34. Such an utterly fantastic birthday gift for your wife, Kevin. Thank you for allowing us this small peak into your life. You two are truly making a difference and I am glad to be able to help, even in such a small way.

    Enjoy your day together!

    Francesca

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  35. Added two links to my blog for you today....wish I could do more...but these links will stay for a while.
    Bless you xo

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  36. To Kevin, Things 1 & 2, and Mrs. Uncool...

    This is by far the most thoughtful birthday gift I can imagine. Our family has been touched by the illness of a child, so I understand to some extent the way it fundamentally changes a family.

    I am so proud to host Kevin's outreach for CureJM today.

    You have all my best wishes for a very Happy Birthday.

    - Julia at Midwest Moms

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  37. I reposted. http://cameracrazy-misty.blogspot.com/2009/10/birthday-gift-diagnosis.html

    And happy birthday to your wife.

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  38. Great job, Kevin. I'm proud to be a part of your beautiful gift to your wife.

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  39. i was wondering if i could post this text on my blog as well?

    madam_diva @ yahoo . com

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  40. You are "The Man"!!!
    Happy Birthday Uncool Wife!!!!
    (I hate when other men out-sweet me)

    Please keep us informed on how well this works.

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  41. Happy Birthday Rhonda! What a wonderful husband you have - but you knew that already, right?! Have a great day and I hope we effectively spread the word regarding JM.

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  42. Happy BIRTHDAY!!!!! This is amazing Kevin, what a great brthday gift. So glad your little girl is doing better and thank God you found a Dr. that knew something.

    Thank you both for spreading the word! Let's kick this thing's ass!

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  43. Happy Birthday! You guys are incredible and I feel so honored to be a part of spreading the word! Thanks! Hope you guys make your donation goal!

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  44. Looks like you got the word out.

    Happy Birthday to your wifey. Hope she is having a great one!

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  45. Came here from the Stiletto Mom herself - I had never heard of it and I commend you for your efforts. From one "special needs" parent to another, it is a tough world we live in but our children make it so much better!! I will repost for you on FB.

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  46. Look at that huge list! How very exciting!

    Happy Birthday, Ms. Home and Uncool. Blessings on you and your sweet fambly!

    (thank you for your invitation to help, Kevin.)

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  47. Hello, Kevin. CatLadyLarew sent me to your blog today. Thank you for raising awareness for such a worthy cause. I will add your family to my prayers.

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  48. Great job!! Sending good vibes your way!! Also sending blog and twitter love.

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  49. Happy Birthday to your lovely wife, and hugs to your whole family!!

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  50. Happy Birthday. If the morning hits to my blog have been any indication, your message will be getting out to more people today than ever before.

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  51. Proud to be part of this, Kevin!

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  52. What a wonderful present to give your wife.

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  53. I just read the post and would LOVE to add it to my blog too!

    What an amazing thing for you to do for your wife. I had never heard of JM until just now, but I work with children, and it's valuable information.

    Please e-mail me and let me know if I can post it on my blog.

    notesfromthecookiejar(at)yahoo(dot)ca

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  54. happy birthday, lady love. i hope all your dreams come true.

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  55. Happy Birthday to your wife!
    What a wonderful gift you have given her spreading the word about JM and I have seen your story all over the blogosphere today

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  56. Add The BS Blog as another blog helping you spread the word today, thanks to reading about it on IB's "Idiot Stew"

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  57. popping over from Bee's Musings.

    Have a wonderful birthday!

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  58. A Wonderful Birthday to Your Love! I congratulate you both on educating many (myself included) on JM and how to help. Much love to all.

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  59. A happy birthday to your love. What a wonderful gift.

    You don't by any chance have a twin brother who's single, do you?

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  60. New here!
    Put your button on my blog. I hope it helps build the awareness you are undoubtedly bringing to JM.
    Cheers to you and your family!

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  61. That's a lot of people, I hope you baked a big cake.

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  62. You are more fun than Kevin Nealon ;)

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  63. Wow, just read your family's incredible story over at Anna's place. Thank goodness your daughter was properly diagnosed in time. And thank you for spreading the word, a wonderful tribute to your wife and little girl. love your blog title. off to read more home and uncool...best to you and your family!

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  64. stay at home dad for 2 plus years now. Found your blog through BERNthis. Glad everything turned out for you and your family. Got a little dust in my eyes before I got through the article though . . .

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  65. Good Luck!!!

    I posted it on my other blog too, but not many folks red there. I hope some of my folks donate.

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  66. Before I read these posts, I had no idea what JM was. Thanks for the enlightenment, and the education as well. :)

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  67. Awesome post. I'm broke right now. I'm being honest, but when I have some money, I'll do my best to send a donation toward this effort.

    Thank you for letting us know more about this . . . in case any of us have to deal with it as well . . .

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  68. Found out about you and your family via the Bloggess - sending blessings your way. :-)

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  69. i joined in late.
    i hope it was a happy birthday for mrs uncool!

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  70. My best friend has this disease (it is in remission now) and has had it since she was about 2 years old. She is now 43, and doing well she even has a son (who is 22)which she was never suppose to be able to have.

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  71. I am late. But I don't think it's too late.

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  72. Sorry it took me so long! Don't blame me-this one is on T-Mobile.(and yes..I even got a month's credit for all of the drama...FANTASTIC!)

    Posted mine today.
    http://outnumberedbythebrood.blogspot.com/2009/10/im-little-late-to-party-but-here-it-is.html

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