Thing 1 and I have returned from Chicago where we saw her Juvenile Myositis specialist without drama. We’ll reserve that for when the blood tests come back next week and we learn whether she can finally get out of this holding pattern on the tapering of her medications.
However, that did not mean the weekend was not without its moments:
- Finally made it to the original Pizzeria Uno – the birth place of Chicago deep dish and, I must say, the pepperoni almost made me switch allegiance from New York thin crust.
- Then I took a bite of a leftover slice right out of our hotel room’s mini-fridge the next morning. When it’s not suitable for a cold breakfast, then it’s second rate.
- We learned Thing 1 and I will be appearing in a medical publication. At least her eyelids and my photos of those eyelids will. Her doc has a study theorizing that the spots that many JM kids get on them might be a key to understanding the disease’s activity.
- Then I got hit up to give some of my own blood and let them take photos of the capillaries in my fingernail beds for a different study involving JM, genetics and possible links the disease has with lupus. My only request was that at some point I get to slam a cane on a table and yell at a doctor, “It’s never lupus!”
- The American Girl Place lost a little more of its must-visit status for Thing 1 once she discovered that Water Tower Place also has a Justice clothing store. Either way, I lost financially.
- The observation deck of the John Hancock Center offers awesome views and a goofy, guided MP3 audio tour by ex-Friend, David Schwimmer. I guess if you are dweebie enough to take the audio tour, then you deserve Ross Gellar.
- David Schwimmer also does promos on one of the hotel’s in-house tourism channels. Talk about whining and dining.
- My learning-adverse daughter actually seemed to enjoy the audio tour, though all she could recall from it was that Chicago claims to be the birthplace of the Twinkie and the ice cream sundae.
- On that note, Thing 1 becomes very chatty once you load her up with sugar and carbs. In these tween days of grunts and one-word answers, that’s a good thing.
- For the first time ever, I did not have to hold the urine specimen cup for my daughter, which is good because at her age that task gets pretty creepy for a dad.
- Not a single issue with airport security or elderly passengers on either end of the trip. However, just as boarding started on our return flight from O’Hare, Thing 1 realized she left her jacket on the back of her chair. In the food court. Half a terminal away. I’m still catching my breathe.